So can I just say that life is unfair? Mike is not feeling better - same issues for three months and he's miserable. Work is not as great as it used to be (maybe that's me and my issues....)
Anna and her friend, Becca, wanted to see Last Song so we went to see it and those movies should come with warning labels for people in hell. It was so sad (and very on point...)
Mason is still a screwup. Do you think he's even tried to contact his dad since bailing on Spring Break? NO! Do you think I've changed my mind about the position I've taken with regard to that brat? NO! It just irritates me that according to Mason's BM (fill in blanks) it isn't fair for Mason to watch his dad die. What about Anna? Is it fair for her to not only watch her dad go through hell but to lose a sibling b/c said sibling is a self-centered idiot who will not realize what he did until it's too late? NO! Is life fair? No.
I'm just stressed and needed an outlet. My family is coming for our reunion this summer and I'm already stressing about family conflict - can we say some? Yes! Can't I just hide in the tequila bottle? Would I be strong enough to climb out of the bottle the next morning?
My spring/summer consists of: Anna's continuation party (and said promotion to high school) in Colorado; Mason's high school graduation in VA (and he says he wants to come to Colorad for the summer?); my BF, Hope, graduates college in VA; my older sister, Tres, graduates college in MT; my little brother graduates high school in MI; my family reunion in CO; a weekend trip w/ friends if Mike is cleared by the drs; and a ton of Anna activities to keep her life as normal as possible....my life sucks...
Tomorrow I will wake up and put on my tiara and purple cape and once again conquer the world - one small babystep at a time. Tonight I am wallowing in self-pity! I know I don't have the market on hell but in my world I feel all alone :( Thanks for listening to me rant!
Tuesday, April 20, 2010
Friday, April 9, 2010
NEWS!
A little update - it's been a rough week. Tuesday we saw the dr. and did a bone marrow biopsy. They are pretty sure Mike has CMV so they put him on the necessary drugs to get that under control. He also had a colonoscopy and that showed CMV as well. The preliminary bone marrow results are no cancer in the marrow. We will have more info on Monday.
He has a PET scan on Monday to see if there's anything in his body and we'll know what percentage of blood is new and what is old on Monday as well. Hopefully he will begin feeling better with the new drugs and we can get this under control. That is my news - no cancer has grown back in six months in his marrow! Yeah!!!!
He has a PET scan on Monday to see if there's anything in his body and we'll know what percentage of blood is new and what is old on Monday as well. Hopefully he will begin feeling better with the new drugs and we can get this under control. That is my news - no cancer has grown back in six months in his marrow! Yeah!!!!
Tuesday, April 6, 2010
Mike
Just a quick update: Mike had a dr. appointment today. His fever spiked a little over the weekend and he's still having some intestinal problems. The dr. is concerned b/c this has been going on for 2 weeks now and getting worse. They think either cmv or gvhd so they are doing a colonoscopy on Thursday - I know, more information than you needed. The Nurse Practitioner we saw today almost put him in the hospital but his primary said to keep him out until we get all the tests back on Friday. He has to go back tomorrow for fluids, Thursday he has the C scope and a dr. appt and then his PET scan on Friday. I anticipate he will go back in the hospital this week if they can't figure it out. They said his liver functions are high (not exactly good since he's had liver issues before.) His bone marrow biopsy was today. We will have those results this week. He's not feeling well right now.
On to the other news in my world. As most of you know Mason did not get on the plane on Sunday stating that it was my fault for buying the ticket in the middle of the day on Easter. Most of you know what this means for Mason Holliday who is now an adult. Bri and Mike are disappointed and I'm angry - angry at him for being so selfish and being like his mother and angry at his mother for being self-centered and hateful.
Bri is settling down for her last 2 months as an eighth grader before she is promoted to high school. Apparently this continuation celebration is akin to graduation high school or prom b/c she informed me we need to go "Dress Shopping."
As always and never faltering I am superwoman, see my shiny purple cape and tiara. For those of you interested (read here WOMEN) I am planning a trip after Mike is cleared by the doctors which I would hope is soon. I am planning a MEET ME IN ST. LOUIS PARTY. St. Louis is halfway between Virginia, Colorado and Michigan so all my girls can come on over. It's going to be for a weekend and we're going to get hotel rooms w/ a nice pool and hide from the world in true Sex and the City fashion! More news on this get together in the future...
As always thanks for the prayers and thoughts.
On to the other news in my world. As most of you know Mason did not get on the plane on Sunday stating that it was my fault for buying the ticket in the middle of the day on Easter. Most of you know what this means for Mason Holliday who is now an adult. Bri and Mike are disappointed and I'm angry - angry at him for being so selfish and being like his mother and angry at his mother for being self-centered and hateful.
Bri is settling down for her last 2 months as an eighth grader before she is promoted to high school. Apparently this continuation celebration is akin to graduation high school or prom b/c she informed me we need to go "Dress Shopping."
As always and never faltering I am superwoman, see my shiny purple cape and tiara. For those of you interested (read here WOMEN) I am planning a trip after Mike is cleared by the doctors which I would hope is soon. I am planning a MEET ME IN ST. LOUIS PARTY. St. Louis is halfway between Virginia, Colorado and Michigan so all my girls can come on over. It's going to be for a weekend and we're going to get hotel rooms w/ a nice pool and hide from the world in true Sex and the City fashion! More news on this get together in the future...
As always thanks for the prayers and thoughts.
Friday, April 2, 2010
Almost 6 Months...
So we had a dr. appt on Thursday. They think Mike has CMV of the gut - not GVHD (graft v. Host). If it was GVH then it would have improved w/ the increase in prednisone but it didn't. He's going for a colonoscopy on Thursday, a PET scan and a bone marrow biopsy on Tuesday. Sunday is his 6 month mark. With the increase in prednisone comes blurry vision and general overall puffiness so he's uncomfortable in his own skin. They are tapering him off his blood pressure meds and tinkering with a couple different things. We have another appointment on Tuesday to see the doctor. CMV has a bunch of negative stuff that could happen - coma, liver failure, pneumonia, etc.
On to other news - I'd like to say better but it's not. I talked to Mason's mom on Sunday about his graduation from high school. Since I manage to upset her with every phone call and since she refuses to speak to me about Mason's airline tickets to see his dad Mason has informed me that he will not be on the plane on Sunday. His Spring Break is next week and I bought the ticket out of Richmond, like she demanded I do, at 4 pm and because it's Easter she will not take him to the airport. Then I asked Mason why Sunday was any different since he was an agnostic and he said that his mom celebrated Easter and I wasn't feeling very nice so I asked why she celebrated the rising of her archenemy since she was the AntiChrist. I know - not very nice. God made one miracle happen this Sunday so maybe He will make another one happen. Or another $350 down the drain wasted on an airline ticket that Mason won't use.
Bri is back from San Diego. She had a blast down there. She is getting excited for the summer. She will volunteer to be a camp counselor for Vacation Bible School and my family reunion is in July. Depending on what is going on with Mike's health we may take a mini vaca when he's healthy enough to travel. She has to wear a dress for her continuation party (being promoted to high school.) We will be dress shopping next week. My baby is being promoted to high school. I'm getting very old.
Dakota is good. He was professionally groomed last week and looks like a different dog - you can see him now. We no longer have the cat for those of you who knew the cat. He is somewhere where I can't kill him for peeing in my clean clothes. Nothing new and exciting in my world. Thanks for the thoughts and prayers.
On to other news - I'd like to say better but it's not. I talked to Mason's mom on Sunday about his graduation from high school. Since I manage to upset her with every phone call and since she refuses to speak to me about Mason's airline tickets to see his dad Mason has informed me that he will not be on the plane on Sunday. His Spring Break is next week and I bought the ticket out of Richmond, like she demanded I do, at 4 pm and because it's Easter she will not take him to the airport. Then I asked Mason why Sunday was any different since he was an agnostic and he said that his mom celebrated Easter and I wasn't feeling very nice so I asked why she celebrated the rising of her archenemy since she was the AntiChrist. I know - not very nice. God made one miracle happen this Sunday so maybe He will make another one happen. Or another $350 down the drain wasted on an airline ticket that Mason won't use.
Bri is back from San Diego. She had a blast down there. She is getting excited for the summer. She will volunteer to be a camp counselor for Vacation Bible School and my family reunion is in July. Depending on what is going on with Mike's health we may take a mini vaca when he's healthy enough to travel. She has to wear a dress for her continuation party (being promoted to high school.) We will be dress shopping next week. My baby is being promoted to high school. I'm getting very old.
Dakota is good. He was professionally groomed last week and looks like a different dog - you can see him now. We no longer have the cat for those of you who knew the cat. He is somewhere where I can't kill him for peeing in my clean clothes. Nothing new and exciting in my world. Thanks for the thoughts and prayers.
Subscribe to:
Posts (Atom)