Quick update - talked to Betsy @ RMCC and she has the results of 2 donors back and 2 more in the lab so she'll have them back next week. Next week she will call me to schedule an appointment to see the transplant dr. Mike's regular oncologist couldn't give us the #s (as far as survival/prognosis) of Mantle Cell Lymphoma patients b/c it's so rare in people Mike's age.
Mike's buddy, Scott, is coming to visit sometime this summer. Mason is expected out on May 29th.
Thursday, April 30, 2009
Wednesday, April 29, 2009
NEWS
Hello to all, this is an update, only an update - no need to panic! We saw the dr. today. Still no word on the transplant donor. I have left a msg. for them. Mike's dr. says he has one more round of hospital chemo before he will do another PET scan. I thought there was one more full round but this is it - another round of MXT/Ara-C and then possibly another ER visit. The dr. is going to start Mike on antibiotics as soon as he's released from the hospital so maybe we won't have the ER visit.
There are a couple of new experimental drugs out on the market so if we don't do the transplant then there's really no concrete drugs that will work so the dr. says maybe several months - possibly a year until it gets bad again.
So Mike goes in on Monday for labs and then Tuesday to the hospital so he can go to band practice on Monday night. His #s look good and he's feeling ok so that is a bonus.
Other than that nothing else is going on. I will update after the next dr. appt or when I have more info.
There are a couple of new experimental drugs out on the market so if we don't do the transplant then there's really no concrete drugs that will work so the dr. says maybe several months - possibly a year until it gets bad again.
So Mike goes in on Monday for labs and then Tuesday to the hospital so he can go to band practice on Monday night. His #s look good and he's feeling ok so that is a bonus.
Other than that nothing else is going on. I will update after the next dr. appt or when I have more info.
Monday, April 27, 2009
new....
Hello again - nothing new is going on. Mike had cbcs scheduled for today but he isn't feeling good so I've moved them to tomorrow. No fever but he slept until almost 11 which is very unusual for him. His back/neck/hips are hurting and he's miserable so he's hanging at home watching movies. I think he has band practice tonight - not sure.
Bri signed up to be a counselor for vacation bible school this summer w/ the church. She has a lot going on. Her band concert is in May so I will upload the DVD when we get it.
Otherwise news at 11.
Bri signed up to be a counselor for vacation bible school this summer w/ the church. She has a lot going on. Her band concert is in May so I will upload the DVD when we get it.
Otherwise news at 11.
Saturday, April 25, 2009
Last Night
Mike watched his Capitals win against the Rangers to continue the Series. My Red Wings swept the series so no worries there (except the grief I get at work about being a Wings fan instead of an Avs fan.)
Bri had a sleepover w/ a friend and we probably won't see her today. Today it is cloudy and yucky in Colorado so I'm going to Flylady my house and then go out to celebrate Carlene's birthday tonight.
Feel free to call the house or send emails/txt. Mike is feeling a little under the weather today and still in Nadir so he has to take it easy. He doesn't have a fever but he's got some nausea, sweating and some pain.
You may get more random stuff on the blog than the emails but I think this is a great way to chronicle what is going on w/ all of us (except Mason in some blogs - because I don't know what's going on w/ him.) Disregard stuff you don't want to know.
Bri had a sleepover w/ a friend and we probably won't see her today. Today it is cloudy and yucky in Colorado so I'm going to Flylady my house and then go out to celebrate Carlene's birthday tonight.
Feel free to call the house or send emails/txt. Mike is feeling a little under the weather today and still in Nadir so he has to take it easy. He doesn't have a fever but he's got some nausea, sweating and some pain.
You may get more random stuff on the blog than the emails but I think this is a great way to chronicle what is going on w/ all of us (except Mason in some blogs - because I don't know what's going on w/ him.) Disregard stuff you don't want to know.
Thursday, April 23, 2009
Updates
I figured this might be easier than the updates I send out on a regular basis. This way everyone gets to see all of the information - rather than some. Feel free to email me at tleaholliday@hotmail.com or Mike at bmikeholliday@netscape.net.
Mike - dr. appt. yesterday and his numbers were low and he needs cbcs on Monday. His next hospital visit is May 5, 2009. He had a rough week in the hospital last week so we'll see how this week goes. He's in Nadir now (low blood count) so he should avoid crowds, sick people and public places.
Brianna - going strong on the honor roll for the last month of school. I cannot believe my baby is going to be 13 in September. Man, I'm feeling old. We are trying to figure out what she's doing over the summer - no concrete plans yet.
Mason - supposed to be out on May 29th for the summer if I buy the ticket. He says he wants to come out so who knows. Don't know how his grades are or if he has to do summer school. The one blessing in my life is I don't have to talk to his mother ever again.
Me - work, work, work...hospital, hospital, hospital...home, home, home. This is my schedule. I have taken to jogging with the dog and I'm down 12 lbs. I have 18 more to go. The weather is nice so I can drive my car again. For those who don't know I own a silver Mazda RX-8 but I can't drive it in the winter time.
Dakota (the dog - an Akita) was sick last week while Mike was in the hospital so I came home to poop/puke/misc. to clean up. I'm slowly steamcleaning my way through the house. God Bless Flylady for 15 min. a day!
Other than that nothing eventful. Work has settled down and Bri will be out of school at the end of May. Her mission trip was great. She loved San Diego and wants to go back. I will update the information on the blog for the group.
Mike - dr. appt. yesterday and his numbers were low and he needs cbcs on Monday. His next hospital visit is May 5, 2009. He had a rough week in the hospital last week so we'll see how this week goes. He's in Nadir now (low blood count) so he should avoid crowds, sick people and public places.
Brianna - going strong on the honor roll for the last month of school. I cannot believe my baby is going to be 13 in September. Man, I'm feeling old. We are trying to figure out what she's doing over the summer - no concrete plans yet.
Mason - supposed to be out on May 29th for the summer if I buy the ticket. He says he wants to come out so who knows. Don't know how his grades are or if he has to do summer school. The one blessing in my life is I don't have to talk to his mother ever again.
Me - work, work, work...hospital, hospital, hospital...home, home, home. This is my schedule. I have taken to jogging with the dog and I'm down 12 lbs. I have 18 more to go. The weather is nice so I can drive my car again. For those who don't know I own a silver Mazda RX-8 but I can't drive it in the winter time.
Dakota (the dog - an Akita) was sick last week while Mike was in the hospital so I came home to poop/puke/misc. to clean up. I'm slowly steamcleaning my way through the house. God Bless Flylady for 15 min. a day!
Other than that nothing eventful. Work has settled down and Bri will be out of school at the end of May. Her mission trip was great. She loved San Diego and wants to go back. I will update the information on the blog for the group.
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