Just a quick note - Mike had Rituxin today, his PET scan is scheduled for Wed. and we're supposed to have a dr. appt. w/ the transplant team on Thurs. but the hospital wants to do the bone marrow biopsy then so I'm waiting to hear about rescheduling. Then Thurs am he is having labs down and sometime next week he needs to have CT scan and chest x-rays.
They have requested the bone marrow from the donor so all is a green light unless something comes back positive for cancer regrowth. I need to take the caregiver's class sometime before the transplant. I will update when I have more info.
Bri is back to school and involved in a ton of church activities. My firm bbq is Sun, the 30th, she has back to school night on the 1st and then a support group meeting on the 3rd.
That's it for now. If you're reading this and didn't get the email can you please send me your address so I can update my address book.
Monday, August 24, 2009
Wednesday, August 19, 2009
Update today
A lot has happened - needless to say after all the hoopla we received a call from RMCC (the original transplant team) on Friday telling us they've reconsidered and will do the transplant which is good b/c I received an email from my insurance saying they wouldn't cover the other facility so we'd have to go to Seattle or Houston.
We have to have a series of tests done - stress tests on organs, EKG, spinal tap, and Mike is doing a round of Rituxin (chemo drug) on Mondays. The team said if they get the donor and everything is a go then we go in about 4 weeks. We still have to go through the caregivers class and a bunch of other stuff but as of right now it's a go.
Bri is going back to a support group for kids who have a terminally ill parent. She starts next month. She has started back to school - 8th grade. Anyway, thanks for the prayers and thoughts and I will keep you all updated.
We have to have a series of tests done - stress tests on organs, EKG, spinal tap, and Mike is doing a round of Rituxin (chemo drug) on Mondays. The team said if they get the donor and everything is a go then we go in about 4 weeks. We still have to go through the caregivers class and a bunch of other stuff but as of right now it's a go.
Bri is going back to a support group for kids who have a terminally ill parent. She starts next month. She has started back to school - 8th grade. Anyway, thanks for the prayers and thoughts and I will keep you all updated.
Thursday, August 13, 2009
Update
This is even newer than the last email. Mike was rejected from the transplant program w/ RMCC so we've applied to the University of Colorado Denver for their program. If they reject him or he doesn't qualify then we have to go to Seattle or Houston - that is not even close yet. We talked to the University people today and meet w/ them on Monday, the 17th. We are taking it one day at a time and will update everyone as info becomes available.
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